Consumers are patients or potential patients, carers, and people who use health care services (all of us, really!).
A community is a group of people who share a common interest – that could be a cultural, social, political, health, economic interest, or a common location.
Consumer and community involvement (often referred to as ‘CCI’) in health research refers to the active partnership between researchers and those affected by, or who may benefit from, the research. It’s about research that is conducted with or by consumers and community members rather to, for or about them.
It is becoming increasingly accepted that consumers and community members add value to health and medical research, and that they have a right and responsibility to do so. There are many benefits to both the community and researchers including:
Research being conducted that is relevant to community needs, as it is informed by consumer and community perspectives and lived experiences Community awareness, understanding and support for health and medical research
More effective translation of research to deliver improved health outcomes
Involvement activities will vary depending on the research project, and we work with researchers to develop the most appropriate involvement strategy. Activities could include:
Providing advice on involvement plans in grant applications
Reviewing plain language summaries
Being a Consumer Representative on a research team
Being a member of a Community Advisory Group
Sharing or presenting research findings
The involvement opportunities we list will describe in detail what is required from those who wish to be involved.
No. Involvement is about consumers and community members having a say in the research, rather than being a participant in a study or trial.
From time to time, we will list opportunities to participate in studies and trials being conducted at Curtin University for those who are interested.
Anyone with an interest in health research can be involved! You might be someone who has a lived experience of a health condition, have a loved one with a health condition or illness, a carer or a health professional.
We offer training for consumers and community members to ensure you feel comfortable and confident in your role. Our team is also available to discuss any concerns or queries you might have.
We strongly advocate for payment of honorariums, and most involvement activities will offer remuneration for out-of-pocket expenses such as transport and parking.
The time commitment will vary depending on the involvement activity. The involvement opportunities we list will describe in detail the time commitment required. We understand circumstances change, and you can opt-out of any activity you are involved in at any time.
We believe all health research projects should include CCI, and the earlier you start the better!
We support all researchers within the Faculty of Health Science at Curtin University and we can work with you to develop a CCI strategy, connect you with appropriate consumers and community members, and support the CCI activities. Contact us to find out more.
If you would like to hear about the latest events and opportunities to be involved, please complete the form below.